August 31, 2011
by Stout Family on 08/31/11
On July 19, 2011 Noah's MRI showed a 5% increase in tumor growth. He finally reached full dose of his ANP treatment at the end of July and was doing very well at this dose.
Unfortunately, he was admitted to UCSF Children's Hospital on August 17th. He was rushed in an ambulance to the local hospital so doctor's could make sure he was stable enough to be transported to UCSF which is an hour away from where we live. An ambulance from UCSF Children's Hospital came to pick up Noah early morning on August 17th from the local hospital with a pediatric doctor and nurse on board. He was diagnosed with very low sodium and because doctors saw minor hydrocephalus in his CT scan, they placed an external shunt in his head. Thank God, Noah woke up at 6:30PM that Thursday, and his sodium levels were back to normal by 10:30PM.
The external shunt revealed no pressure and very little fluid in Noah's head. Because of that, the Neurosurgeon advised an internal shunt was not needed at this time. They also gave very little sodium that day and basically informed us that Noah's body healed itself.
Noah also had an MRI done on Sunday, August 20 which thankfully revealed no tumor growth. It also revealed two little spots below the tumor which at first were thought of as blood clots or dead tissue cells. His Cardio Echo Gram proved they weren't blood clots since Noah's heart is perfect. Doctor's at UCSF cannot explain the two little spots but confirmed they are not in any dangerous areas so not a concern. Dr. B's office stated there is a high possibility of it being tumor debris. Since we were first told they could be dead tissue and since Dr. B's office says there's a high possibility of it being tumor debris, we speculate that the tumor is breaking down which tipped off Noah's chemical imbalancing.
Noah was discharged after a week and is very happy to be home. Thank you to the Bro. Rey Membrere and the deacons who came to annoint Noah with oil at the hospital, daily. Thank you to UCSF medical staff for taking such great care of Noah. Thank you to Dr. Burzynski's medical staff for being available to guide us 24/7. Thank you to all the friends and family who visited Noah daily, making his time at the hospital fun and fly right by.
What happened to Noah was unexplainable to the doctors. How his body healed itself was also unexplainable. The unexplainable healing and results of his last MRI are called miracles. Thank you God!
