December 28, 2014

As we reflect back, this year has been so very difficult for our entire family as we celebrated special occasions for the first time, without Noah. Everything's different because there's an emptiness.

This year, our family took a couple trips to get away and bond. We also took the girls out a lot - it was a whole new world for them. We enrolled Giana in swim class - she is a little mermaid! We had a family motto: if Noah couldn't do it then none of us did it. That way, he di...dn't feel like he was missing out on anything. Noah's feelings were first priority for all of us and not doing certain things didn't matter. All that mattered was we were all happy - especially Noah. The Feds finally released a partial hold to Dr. Burzynski's clinical trial of Antineoplastons. Many of you can attest that Noah lived a wonderful and extended 3 1/2 years after diagnosis. Because Noah lived a great life even with DIPG, we continue to support Dr. Burzynski for the simple fact that we prayed for guidance and were lead to this doctor who in our mind was God's instrument to help Noah. He sure held up to his mission - Noah didn't suffer even with the curve balls thrown his way.

Now, as we begin a new year, we must renew our lives. Even if 9 months have gone by already, as one friend reminded me, the end is near and we're that much closer to seeing Noah again. Blessings too all and may you have a prosperous new year!