January 6, 2012
by Stout Family on 01/06/12
Happy New Year!!!
On December 8th while at Noah’s MRI appointment, we noticed he was very lethargic and flushed so we took him to the UCSF clinic once the MRI was completed. The doctors at the clinic checked Noah’s vitals which were good, but because Noah was becoming sleepier they immediately admitted him into the hospital which is located across the street. The UCSF Neurosurgeons tapped his shunt (which is the process to remove fluid from a shunt reservoir), and they found that his shunt wasn’t working properly. Noah was in the operating room within 3 hours of being admitted to the hospital. The Neurosurgeons determined the valve wasn’t functioning so they replaced it and Noah was released the following day.
On December 26th, we noticed Noah was becoming lethargic again, and this time he complained of a headache and wasn’t feeling very well. We rushed him back to UCSF Hospital where he was admitted yet again. Noah had surgery the very next morning where the Neurosurgeons replaced his valve once more and lowered the pressure level. For a steady monitored recovery Noah was required to stay in the hospital for three days this time and was finally released on December 29th... Just in time for Noah to spend New Year’s Eve with his family at home.
The MRI on December 8th showed no tumor growth! Praise God! The next MRI is scheduled for February.
Each MRI, each surgery, each and every episode dealt, Noah has exceeded with positive outcomes. Among all of that has been preceded, December 27th is the utmost momentous to date. Noah has surpassed the given time frame since his initial diagnosis of DIPG.
We are amazed by the continuous support, through the unpronounced simple acts of kindness, donations and devout prayers. Alongside our faith, every thought and word spoken, gifted with encouragement has framed an everlasting impression towards our family and with that we are sincerely grateful.
